The Hawaii Hemophilia Foundation is a non-profit, volunteer-run organization serving the needs of people with hemophilia and related bleeding disorders such as Von Willebrand Disease. HHF is dedicated to improving the lives and increasing the independence of kids and families challenged by bleeding disorders. Since 2010, the grassroots organization has worked at the local level, providing consistent support, education, community-building programs, healthcare advocacy and impartial referrals.
The diagnosis of a bleeding disorder usually occurs in early childhood, and is often unexpected by the family. While new treatments can help affected individuals live a long and more independent life, a diagnosis presents a major emotional, financial and lifestyle challenge. HHF provides a network of local support to help all those affected by bleeding disorders meet those challenges. Special programs include Camp Koko Ohana, a weekend Family Camp where families have fun as they learn to deal with their disorder; an annual Educational Symposium; and the Patient Assistance Program.
HHF’s programs make a direct and life-changing impact on the lives of over 200 Hawaii residents and their families. By connecting individuals and families that have met similar challenges, HHF creates a much-needed community of local support. Combined with unbiased educational resources and independence-building experiences, these offerings make HHF a true lifeline for all those affected by bleeding disorders. As a donor-supported, volunteer organization, contributions of time and financial resources are essential to help these valuable services continue in our community.
45-1031B Wailele Rd.
Jennifer Chun- Executive Director – firstname.lastname@example.org
Cinda Hueu – President – email@example.com