Celebrating the past while looking toward the future…

In 2009, a small group of dedicated families came together to create a support network to improve the quality of life for children and families affected by bleeding disorders here in Hawaii.  Five years later, the Hawaii Hemophilia Foundation is still working to support the Hawaii Families living with bleeding disorders.

We are very proud of our efforts and successes.  HHF Played a part in enhancing care, advocating for a safe blood supply and in helping families meet the emotional and psychosocial needs.

We are thankful for your generous support of our mission.

This year, we supported nearly 30 families through our educational programs, camp and providing direct services to families.

As we reflect on the last five years, HHF is also planning for the future.

we are excited for the 2nd Annual Big Island 300 in April and the debut of our HHF & NHF Walk in September!

Please help HHF by creating a walk team and raising money for Camp Koko Ohana, our educational programs and one day a Children’s Camp.

On behalf of our HHF Board of Directors and myself, we wish you and your family a wonderful 2014!

Mahalo for all your continued support,

Jennifer Chun

 

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Letter from your New Executive Director

Aloha Hawaii Hemophilia Foundation Ohana,

The Hawaii Hemophilia Foundation (HHF) now has a full time employee.  After many years of working a full time job, raising a family of 5 children and building the HHF in what little spare time I had, I have been given the opportunity to serve as your Executive Director.  The National Hemophilia Foundation (NHF) has given us a grant for the next two years.  Thanks to NHF, I have now been given the opportunity to run, build and bring many more chances to the Hawaii community to unite together as an Ohana.

Well, it has been a rough first six months, but very exciting! What an amazing organization we have. I have felt incredibly supported by NHF, our Board of Directors, and the HTC staff. They have made this transition smooth and seamless, and I couldn’t be more grateful.

I am so excited to take this journey into HHF and I can promise you some exciting things are coming down the pipeline.  My focus for the year, as determined by the Board of Directors, is to bring the community together.  Our Chapter is in a wonderful place. The organization is strong, the programming is in a good starting position, all policies and procedures are in place and now…WE WANT TO HEAR FROM YOU!  Please email me at hawaiihemophiliafoundation@hotmail.com!

We want to hear from YOU – what you’d like to see in your Chapter. What interests do YOU have? What education are YOU lacking? What do YOU need in terms of community? Do you feel like YOU are being listened to? What does YOUR family want from your Hawaii Chapter?

My job in the next year… is to listen.  We’ve taken the steps to make the Chapter strong and sustainable and now…let’s bring everybody together. con·nect

1. to join, link, or fasten together; unite or bind.

2. to establish communication between; put in communication.

3. to have as an accompanying or associated feature.

4. to cause to be associated, as in a personal or business relationship: to connect oneself with a group of like-minded persons.

5. to associate mentally or emotionally.

 

Mahalo,

Jennifer Chun Executive Director

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